Abstract

XAVIER, Eliana Costa  and  ROCHA, Kátia Bones. Subjectiuity and Intersectionality: Sickness Experiences of Black Women with Sickle-Cell Disease. Av. Psicol. Latinoam. [online]. 2017, vol.35, n.2, pp.267-282. ISSN 1794-4724.  https://doi.org/10.12804/revistas.urosario.edu.co/apl/a.3804.

This study aims to identify and analyze the history of black women with sickle cell disease and understand how their subjectivity is built and confronted from subjective senses associated with gender markers, race and class. This is a qualitative study involving nine black women accompanied by Sickle Cell Disease Reference Center of Porto Alegre's Hospital de Clínicas. The semi-structured interviews were analyzed by critical discourse analysis. The results showed that black women perceive their health status as an illness that narrows the ties between their racial belonging and their constructions of gender and class. The speech of black women with sickle-cell disease transcended the complexity of chronic disease, transforming and building opportunities that empower them as women, as mothers, and as social subjects. On the subjective sense, they pointed out that intersectionality of race and class intensifies the public blindness of black women and of the issues related to the black population, causing a feeling of invisibility.

Keywords : sickle-cell disease; intersectionality; subjectivity; race; gender; social class.

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