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Print version ISSN 0121-4500
Abstract
LIMA FALCAO DO VALE, Paulo Roberto; CANDIDA CORDEIRO, Rosa and SOUZA DE SANTANA CARVALHO, Evanilda. Expectations of children's mothers with Congenital Zika Syndrome: attributions of governors. av.enferm. [online]. 2022, vol.40, n.2, pp.183-198. Epub Dec 12, 2022. ISSN 0121-4500. https://doi.org/10.15446/av.enferm.v40n2.88943.
Objective:
Understand the expectations of the mothers of children with Congenital Zika virus Syndrome on the attributions of the managers directed to integral care to the child.
Materials and method:
Qualitative study based on in-depth interviews and Story-Theme Design with 10 mothers in Feira de Santana, Bahia, Brazil, between September and November 2017.
Results:
The expectations of the mothers reside in increasing the number of sessions of early stimulation and rehabilitation; include new treatment methods such as eco-therapy, hydrogymnastics and advanced physiotherapy; building rehabilitation centers; qualify the professionals of the health care network; insert, minimally, the services of Occupational Therapy, Physiotherapy and Speech Therapy in the health network of the municipality of residence; ensure access to orthosis, prosthesis, wheelchairs and bath chairs, and other rehabilitation appliances, as well as materials such as diapers and medicines; to debureaucratize the course for the granting of the continuous benefit; to define a specific teaching-learning model for children.
Conclusions:
Disregarding the expectations of mothers means overloading them with services that would be the legal responsibility of the State, affecting their illness, in addition to restricting the child's development and increasing cases of judicialization of health.
Keywords : Microcephaly; Health Manager; Zika Virus; Disabled Children; Maternal Behavior (source: Dees, BIREME).